Community Resources

Hero patient resources

Support for patients, their families and caregivers.

Patient advocacy organizations can serve an essential role in supporting patients, their families and caregivers. The following organizations offer resources and information to help navigate the complex therapeutic landscape, and uniQure is proud to collaborate with each of them:

Huntington’s disease

  • Huntington’s Disease Society of America

    505 Eighth Avenue / Suite 902
    New York, NY 10018
    800-345-HDSA

    View Website

  • European Huntington Association

    Vognsneset 30
    4643 Søgne
    Norway

    View Website

  • Help4HD

    5050 Laguna Blvd. 112 543
    Elk Grove, CA 95758

    View Website

  • Huntington's Disease Youth Organization (HDYO)

    United States
    PO Box 530276
    Livonia, MI 48153

    United Kingdom
    61 Bridge Street
    Kington
    HR5 3DJ

    View Website

  • HD Reach

    2054 Kildaire Farm Rd, #427
    Cary, NC 27518
    (919) 803-8128

    View Website

Temporal Lobe Epilepsy (TLE)

  • Epilepsy Foundation

    3540 Crain Highway, Suite 675,
    Bowie, MD 20716
    24/7 Helpline: 1-800-332-1000

    View Website

  • Cure Epilepsy

    420 N. Wabash Avenue, Suite 650
    Chicago, IL 60611
    (312) 255-1801

    View Website

  • International Bureau for Epilepsy

    View Website

Fabry

ALS

  • ALS Association

    1300 Wilson Boulevard, Suite 600
    Arlington, VA 22209
    (800) 782-4747

    View Website

  • European Organization for Professionals and Patients with ALS (EUpALS)

    Vaartkom 17, B-3000
    Leuven, Belgium

    View Website

  • International Alliance of ALS/MND Associations

    View Website

Hemophilia

North America

  • The Coalition for Hemophilia B

    825 3rd Ave #2
    New York, NY 10022
    (212) 520-8272

    View Website

  • Hemophilia Federation of America

    820 First St NE #720
    Washington, DC 20002
    (202) 675-6984

    View Website

  • National Hemophilia Foundation

    7 Penn Plaza Suite 1204
    New York, NY 10001
    (212) 328-3700

    View Website

Europe

International

Rare Disease Organizations

United States

Europe

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